COVID-19 and our community

COVID-19 is having an enormous impact on us all. The silver lining is it creates a chance for everyone to better understand the lived experience of persistent pain.

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Mary O'Keefe - Communications Committee ChairPublished on 02 June 2020

COVID-19 is having an enormous impact on us all. The silver lining is it creates a chance for everyone to better understand the lived experience of persistent pain.

Our entire lives have been turned upside down in a matter of months. Suddenly some of us have little to no income. We are isolated. We are watching our businesses fall apart. Our debts are mounting. We have lost our regular social groups and activities. We are experiencing depression, anxiety, loneliness, fear, confusion, frustration, and uncertainty on a massive scale. We are watching others cope really well and others really badly. We are watching entire populations in extreme distress. We are navigating services and systems we may not have had any experience with before - JobSeeker and JobKeeper. We have gone from feeling like productive, self-sufficient members of society to playing the waiting game. When is this going to end? What if I can’t work again? Why me? Am I going to lose my house? I have no energy. Everything is hopeless. This could go on for months, maybe years…... Being faced with this uncertainty and isolation are similar experiences when embarking on a persistent pain journey. For everyone this creates a unique opportunity to understand what our family/friends/patients in pain might be going through. For those of us in pain, it has created added complexity as we navigate our care.

We want to let you know that you are not alone.

Right now, we can benefit from the knowledge that pain depends on the perceived balance of danger and safety. It is a natural human reflex to protect ourselves, and any credible evidence of danger to the self (me, you, us) can turn pain up, and any credible evidence of safety can turn it down. There is likely lots of credible evidence of danger at the moment with all the uncertainty thrown upon us by COVID-19.

The isolation forced upon us by COVID-19 isn’t going to disappear anytime soon. At Pain Revolution we want to ensure that people with persistent pain are not isolated, have like-minded people to chat with, and feel supported. This is why the Pain Revolution Lived Experience Community was created. The Community offers a safe space for isolated people to come together to both share their individual experiences, learnings and support each other.

If you, or someone you know, is living with persistent pain, please join us for our next monthly event. We meet on the last Thursday of each month at 6pm (AEDT), and it’s free to attend.

The community meets each month via video conference and discusses different pain education concepts and experiences together, led by a facilitator and a pain educator. The sessions thrive on the collective wisdom of people engaged with that journey to help others at earlier stages, and to support and inspire each other to persevere.

To find out more, or to register your interest, please email Seanna:

Come join the Revolution, from the comfort of your own living room.

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Mary O'KeefeJune 02 2020

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